Home Health Care Resources

Enhancing Independence: A Consumer’s Guide to Personal Assistance Services

Description: This is a step-by-step guide for consumers to hire personal assistants (PA). The model is based on Missouri CILs’ self-directed PAS system.

URL:

Creation Date: 2005            

Type of Product: guide/how-to

People Required: individual

Adaptation Needed: might need to update information; guide makes assumptions about CIL PAS involvement and some models may differ by state and organization

Rural Adaptations: does not appear to be limited to urban areas

Reading Time: does not take a long time to read the document

Funding: none needed for the guide; PAs are expensive

Staff Needed: PAs; staff to assist with paperwork planning and management for some consumers

Supplies: this guide; phone/calendar/flyers for managing/hiring

Technology: may need internet access depending on advertising methods

Alone/Group: done alone or in small group

Recruitment/Attrition Risk: availability of PAs, administrative staff

Plain Language Rating (Flesch-Kincaid): Grade 14

Practical As-Is for Implementation: great


Enhancing Independence: An Assistant’s Guide to Personal Assistance Services

Description: This is a step-by-step guide for individuals hired as PAs. It is written under a consumer-directed service model.

URL: 

Creation Date: 2005            

Type of Product: guide/how-to

People Required: individual

Adaptation Needed: might need to update some parts of guide; guide makes some assumptions about service model that may need to be changed

Rural Adaptations: does not appear to be limited to urban areas

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: PAs

Supplies: this guide; anything adaptive/assistive equipment (e.g. hoyer lifts) to practice/use

Technology: need this guide, possible additional resources; can be printed

Alone/Group: done alone (with consumer) or small group to practice tasks

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 9

Practical As-Is for Implementation: great


Enhancing Independence: A Personal Attendant Training Manual

Description: This is a step-by-step guide for individuals hired as PAs. It features a detailed manual for PAs working in a consumer-directed personal assistant services model.

URL: 

Creation Date: 1998            

Type of Product: guide/how-to

People Required: individual

Adaptation Needed: older manual, may need to update some information

Rural Adaptations: does not appear to be limited to urban areas

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: PAs

Supplies: this guide; anything adaptive/assistive equipment (e.g. hoyer lifts) to practice/use

Technology: need this guide and other resources included; can be printed

Alone/Group: one alone (with consumer) or small group to practice tasks

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 15

Practical As-Is for Implementation: great


Health Snapshot: An Introduction to Spinal Cord Injury Personal Assistant Services

Description: This infosheet includes an overview of PAs and models to hire PAs. It includes brief descriptions of the Agency, Consumer-Driven, and Cash-and-Counseling Models.

URL: 

Creation Date: 2003

Type of Product: infosheet

People Required: organization

Adaptation Needed: just an overview, not a product; would need systems advocacy or organizational restructuring to adapt a PAS model

Rural Adaptations: not all models are available in all communities; cash-and-counseling is especially rare

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: one for guide; many to implement models

Supplies: just overview document

Technology: need this document; can be printed                                                    

Alone/Group: done alone

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 14

Practical As-Is for Implementation: good, just a brief overview


Things to Know About Aging and Spinal Cord Surgery

Description: This consumer infosheet includes information about aging with a spinal cord injury. The health tips that are included are sorted by body system.

URL:

Creation Date: 2018            

Type of Product: research; infosheet; tips

People Required: individual

Adaptation Needed: little to none needed

Rural Adaptations: may be a limited availability of certain medical professionals

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: some people may need support to follow medical tips or go to check-ups

Supplies: need this guide

Technology: need this guide; can be printed

Alone/Group: done alone

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 9

Practical As-Is for Implementation: great

Factsheets: Aging Well with a Physical Disability

Description: Series of tips and factsheets on various aging topics.

URL: Fact sheet collection: http://agerrtc.washington.edu/info/factsheets

For Everyone 

For Clinicians & Providers

Creation Date: 2015-2018           

Type of Product: infosheet; tips 

People Required: individual

Adaptation Needed: little to none needed

Rural Adaptations: some medical services and tips may be less available in rural areas

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: some people may need assistance completing check-ups or other advice in the guides

Supplies: need this guide and external resources mentioned

Technology: need these guides and other resources included; can be printed

Alone/Group: done alone

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 14 (varies by guide)

Practical As-Is for Implementation: great


Aging Research and Guides from RRTC: Healthy Aging and Physical Disability

Description: Various research and guides on avoiding secondary conditions while aging with a disability.

URL: 

How to Age Well with Secondary Problems 

Living with Spinal Cord Injury: Watching for Secondary Conditions

How to Sidestep Chronic Health Problems as You Age  

The Benefits of Staying Engaged in Life Despite Chronic Pain       

How to Age Well with Secondary Problems 

Living with Spinal Cord Injury: Watching for Secondary Conditions           

Creation Date: 2012-2016                        

Type of Product: research; infosheet; tips

People Required: individual

Adaptation Needed: some of the older research might be somewhat outdated

Rural Adaptations: some medical services and tips may be less available in rural areas

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: some people may need assistance completing check-ups or other advice in the guides

Supplies: need this guide and external resources mentioned

Technology: need this guide and other resources included; can be printed

Alone/Group: done alone

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 13 (varies by infosheet)

Practical As-Is for Implementation: good


Partnerships in Wellness

Description: 8-week course with activities and goals teaching persons with I/DD about healthy living; learn with partner that does not have I/DD.

URL: Partnerships in Wellness

Creation Date: 2016            

Type of Product: workshop

People Required: organization

Adaptation Needed: may need some large changes given technology involved

Rural Adaptations: does not appear to be limited to urban areas; need for technology might limit ability to conduct in rural areas

Reading Time: 8 week course, 2 hour sessions one time per week, outside activities

Funding: some materials may not be on hand; more for rural adaptions

Staff Needed: two facilitators

Supplies: manual and many materials, all provided

Technology: internet, computer, projector, PowerPoint

Alone/Group: collaboration with RTC on Community Living at University of Minnesota to get materials

Recruitment/Attrition Risk: risk for rural communities; time/technology commitment; having a partner without disabilities

Plain Language Rating (Flesch-Kincaid): Grade 12

Practical As-Is for Implementation: okay


Nutrition and Exercise for Wellness and Recovery (NEW-R)

Description: This is a physical activity guide for improving weight management and wellness for those with psychiatric illnesses.

URL: http://www.cmhsrp.uic.edu/health/weight-wellbeing.asp

Creation Date: 2011           

Type of Product: curriculum 

People Required: organization

Adaptation Needed: need to provide video facilitation (internet videos)

Rural Adaptations: does not appear to be limited to rural areas

Reading Time: eight 90-minute sessions

Funding: none needed for the guide

Staff Needed: 1-2 facilitators

Supplies: need this guide and external resources mentioned

Technology: need this guide (can be printed); online videos

Alone/Group: done alone (single organization plus participants)

Recruitment/Attrition Risk: need a more concrete how-to guide; readability

Plain Language Rating (Flesch-Kincaid): Grade 12

Practical As-Is for Implementation: okay


Aging with Developmental Disabilities: Women’s Health Issues

Description: This is an infosheet regarding parenting with a mental illness and how to increase child resilience.

URL: 

Creation Date: 1999            

Type of Product: infosheet; tips

People Required: individual

Adaptation Needed: language outdated (R-word), some health information might be outdated

Rural Adaptations: availability of some health resources and medical professionals may be limited

Reading Time: does not take a long time to read the document

Funding: none needed for the guide

Staff Needed: some people may need assistance completing check-ups or other advice in the guides

Supplies: need this guide

Technology: need this guide; can be printed

Alone/Group: done alone

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 14

Practical As-Is for Implementation: okay, may generate ideas to find newer resources on topic


Enhancing your Immune Health: Facilitator’s Guide

Description: This manual has 5 modules designed to improve immunity and health among people with mental illnesses. This material was developed specifically to educate people with lived experience of mental illness, but it can be used by anyone who wishes to understand and enhance their immune health.

URL:

Creation Date: 2021          

Type of Product: curriculum, information/database, tips

People Required: individual

Adaptation Needed: little to none needed

Rural Adaptations: this guide can be printed

Reading Time: does not take a long time to read guide

Funding: none to use guide

Staff Needed: to facilitate

Supplies: this guide

Technology: can print

Alone/Group: group

Recruitment/Attrition Risk: none

Plain Language Rating (Flesch-Kincaid): Grade 12

Practical As-Is for Implementation: great