- Enhancing Independence: A Consumer’s Guide to Personal Assistance Services
- Enhancing Independence: An Assistant’s Guide to Personal Assistance Services
- Enhancing Independence: A Personal Attendant Training Manual
- Health Snapshot: An Introduction to Spinal Cord Injury Personal Assistant Services
- Things to Know About Aging and Spinal Cord Surgery
- Factsheets: Aging Well with a Physical Disability
- Aging Research and Guides from RRTC: Healthy Aging and Physical Disability
- Partnerships in Wellness
- Nutrition and Exercise for Wellness and Recovery (NEW-R)
- Aging with Developmental Disabilities: Women’s Health Issues
- Enhancing your Immune Health: Facilitator’s Guide
Enhancing Independence: A Consumer’s Guide to Personal Assistance Services
Description: This is a step-by-step guide for consumers to hire personal assistants (PA). The model is based on Missouri CILs’ self-directed PAS system.
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URL:
Creation Date: 2005
Type of Product: guide/how-to
People Required: individual
Adaptation Needed: might need to update information; guide makes assumptions about CIL PAS involvement and some models may differ by state and organization
Rural Adaptations: does not appear to be limited to urban areas
Reading Time: does not take a long time to read the document
Funding: none needed for the guide; PAs are expensive
Staff Needed: PAs; staff to assist with paperwork planning and management for some consumers
Supplies: this guide; phone/calendar/flyers for managing/hiring
Technology: may need internet access depending on advertising methods
Alone/Group: done alone or in small group
Recruitment/Attrition Risk: availability of PAs, administrative staff
Plain Language Rating (Flesch-Kincaid): Grade 14
Practical As-Is for Implementation: great
Enhancing Independence: An Assistant’s Guide to Personal Assistance Services
Description: This is a step-by-step guide for individuals hired as PAs. It is written under a consumer-directed service model.
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URL:
Creation Date: 2005
Type of Product: guide/how-to
People Required: individual
Adaptation Needed: might need to update some parts of guide; guide makes some assumptions about service model that may need to be changed
Rural Adaptations: does not appear to be limited to urban areas
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: PAs
Supplies: this guide; anything adaptive/assistive equipment (e.g. hoyer lifts) to practice/use
Technology: need this guide, possible additional resources; can be printed
Alone/Group: done alone (with consumer) or small group to practice tasks
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 9
Practical As-Is for Implementation: great
Enhancing Independence: A Personal Attendant Training Manual
Description: This is a step-by-step guide for individuals hired as PAs. It features a detailed manual for PAs working in a consumer-directed personal assistant services model.
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URL:
Creation Date: 1998
Type of Product: guide/how-to
People Required: individual
Adaptation Needed: older manual, may need to update some information
Rural Adaptations: does not appear to be limited to urban areas
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: PAs
Supplies: this guide; anything adaptive/assistive equipment (e.g. hoyer lifts) to practice/use
Technology: need this guide and other resources included; can be printed
Alone/Group: one alone (with consumer) or small group to practice tasks
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 15
Practical As-Is for Implementation: great
Health Snapshot: An Introduction to Spinal Cord Injury Personal Assistant Services
Description: This infosheet includes an overview of PAs and models to hire PAs. It includes brief descriptions of the Agency, Consumer-Driven, and Cash-and-Counseling Models.
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URL:
Creation Date: 2003
Type of Product: infosheet
People Required: organization
Adaptation Needed: just an overview, not a product; would need systems advocacy or organizational restructuring to adapt a PAS model
Rural Adaptations: not all models are available in all communities; cash-and-counseling is especially rare
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: one for guide; many to implement models
Supplies: just overview document
Technology: need this document; can be printed
Alone/Group: done alone
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 14
Practical As-Is for Implementation: good, just a brief overview
Things to Know About Aging and Spinal Cord Surgery
Description: This consumer infosheet includes information about aging with a spinal cord injury. The health tips that are included are sorted by body system.
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URL:
Creation Date: 2018
Type of Product: research; infosheet; tips
People Required: individual
Adaptation Needed: little to none needed
Rural Adaptations: may be a limited availability of certain medical professionals
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: some people may need support to follow medical tips or go to check-ups
Supplies: need this guide
Technology: need this guide; can be printed
Alone/Group: done alone
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 9
Practical As-Is for Implementation: great
Factsheets: Aging Well with a Physical Disability
Description: Series of tips and factsheets on various aging topics.
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URL: Fact sheet collection: http://agerrtc.washington.edu/info/factsheets
For Everyone
- Age, Hearing Loss, and Communication: What Are My Rights?
- How to Manage Disability-Related Pain as You Age
- Living Well with Age-Related Vision Loss
- Tips for Healthy Eating & Healthy Aging
- How to Reduce Stress Through Mindfulness
- How to Bounce Back
- Aging with a Disability: Tips for your Sex Life
- How to Stay Physically Active
- How to Cope with Depression
- How to Get the Most Out of Your Health Care Visits
- How to Sleep Better
- How to Find Trustworthy Health Information from the Internet
- Tips for Improving Memory & Thinking
- Employment Concerns
- How to Prevent Falls
- How to do a Lot with a Little: Managing Your Energy
For Clinicians & Providers
- How to Make Healthcare Accessible for All
- Disability Stigma & Your Patients
- Provider’s Guide for Aging Well with a Physical Disability Factsheets
Creation Date: 2015-2018
Type of Product: infosheet; tips
People Required: individual
Adaptation Needed: little to none needed
Rural Adaptations: some medical services and tips may be less available in rural areas
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: some people may need assistance completing check-ups or other advice in the guides
Supplies: need this guide and external resources mentioned
Technology: need these guides and other resources included; can be printed
Alone/Group: done alone
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 14 (varies by guide)
Practical As-Is for Implementation: great
Aging Research and Guides from RRTC: Healthy Aging and Physical Disability
Description: Various research and guides on avoiding secondary conditions while aging with a disability.
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URL:
How to Age Well with Secondary Problems
Living with Spinal Cord Injury: Watching for Secondary Conditions
How to Sidestep Chronic Health Problems as You Age
The Benefits of Staying Engaged in Life Despite Chronic Pain
How to Age Well with Secondary Problems
Living with Spinal Cord Injury: Watching for Secondary Conditions
Creation Date: 2012-2016
Type of Product: research; infosheet; tips
People Required: individual
Adaptation Needed: some of the older research might be somewhat outdated
Rural Adaptations: some medical services and tips may be less available in rural areas
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: some people may need assistance completing check-ups or other advice in the guides
Supplies: need this guide and external resources mentioned
Technology: need this guide and other resources included; can be printed
Alone/Group: done alone
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 13 (varies by infosheet)
Practical As-Is for Implementation: good
Partnerships in Wellness
Description: 8-week course with activities and goals teaching persons with I/DD about healthy living; learn with partner that does not have I/DD.
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Creation Date: 2016
Type of Product: workshop
People Required: organization
Adaptation Needed: may need some large changes given technology involved
Rural Adaptations: does not appear to be limited to urban areas; need for technology might limit ability to conduct in rural areas
Reading Time: 8 week course, 2 hour sessions one time per week, outside activities
Funding: some materials may not be on hand; more for rural adaptions
Staff Needed: two facilitators
Supplies: manual and many materials, all provided
Technology: internet, computer, projector, PowerPoint
Alone/Group: collaboration with RTC on Community Living at University of Minnesota to get materials
Recruitment/Attrition Risk: risk for rural communities; time/technology commitment; having a partner without disabilities
Plain Language Rating (Flesch-Kincaid): Grade 12
Practical As-Is for Implementation: okay
Nutrition and Exercise for Wellness and Recovery (NEW-R)
Description: This is a physical activity guide for improving weight management and wellness for those with psychiatric illnesses.
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URL: http://www.cmhsrp.uic.edu/health/weight-wellbeing.asp
Creation Date: 2011
Type of Product: curriculum
People Required: organization
Adaptation Needed: need to provide video facilitation (internet videos)
Rural Adaptations: does not appear to be limited to rural areas
Reading Time: eight 90-minute sessions
Funding: none needed for the guide
Staff Needed: 1-2 facilitators
Supplies: need this guide and external resources mentioned
Technology: need this guide (can be printed); online videos
Alone/Group: done alone (single organization plus participants)
Recruitment/Attrition Risk: need a more concrete how-to guide; readability
Plain Language Rating (Flesch-Kincaid): Grade 12
Practical As-Is for Implementation: okay
Aging with Developmental Disabilities: Women’s Health Issues
Description: This is an infosheet regarding parenting with a mental illness and how to increase child resilience.
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URL:
Creation Date: 1999
Type of Product: infosheet; tips
People Required: individual
Adaptation Needed: language outdated (R-word), some health information might be outdated
Rural Adaptations: availability of some health resources and medical professionals may be limited
Reading Time: does not take a long time to read the document
Funding: none needed for the guide
Staff Needed: some people may need assistance completing check-ups or other advice in the guides
Supplies: need this guide
Technology: need this guide; can be printed
Alone/Group: done alone
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 14
Practical As-Is for Implementation: okay, may generate ideas to find newer resources on topic
Enhancing your Immune Health: Facilitator’s Guide
Description: This manual has 5 modules designed to improve immunity and health among people with mental illnesses. This material was developed specifically to educate people with lived experience of mental illness, but it can be used by anyone who wishes to understand and enhance their immune health.
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URL:
Creation Date: 2021
Type of Product: curriculum, information/database, tips
People Required: individual
Adaptation Needed: little to none needed
Rural Adaptations: this guide can be printed
Reading Time: does not take a long time to read guide
Funding: none to use guide
Staff Needed: to facilitate
Supplies: this guide
Technology: can print
Alone/Group: group
Recruitment/Attrition Risk: none
Plain Language Rating (Flesch-Kincaid): Grade 12
Practical As-Is for Implementation: great
- Enhancing Independence: A Consumer’s Guide to Personal Assistance Services
- Enhancing Independence: An Assistant’s Guide to Personal Assistance Services
- Enhancing Independence: A Personal Attendant Training Manual
- Health Snapshot: An Introduction to Spinal Cord Injury Personal Assistant Services
- Things to Know About Aging and Spinal Cord Surgery
- Factsheets: Aging Well with a Physical Disability
- Aging Research and Guides from RRTC: Healthy Aging and Physical Disability
- Partnerships in Wellness
- Nutrition and Exercise for Wellness and Recovery (NEW-R)
- Aging with Developmental Disabilities: Women’s Health Issues
- Enhancing your Immune Health: Facilitator’s Guide